Treatments
Blood & Marrow Transplant Information Network (BMT InfoNet)
The BMT InfoNet is a not-for-profit organization dedicated exclusively to serving the needs of the transplant community. They strive to provide high quality medical information in easy-to-understand language, so that patients can be active, knowledgeable participants in their health care planning and treatment. On the site, there is a Patient-to-Survivor form that can be filled out in order to match a patient with a survivor who can share valuable information and provide emotional support.
http://www.bmtinfonet.org/patient.htmlDacogen.com: The official site for Dacogen (decitabine)
Dacogen (decitabine) is an injection therapy approved to treat MDS, especially its symptoms. Even if patients have already received other types of treatment, they can still receive Dacogen. The site contains an informative section on how Dacogen works in the body and how it differs from other treatments.
http://www.dacogen.comNational Bone Marrow Transplant Link
This site is designed to help patients, their caregivers and families understand and cope with the social and emotional aspects of bone marrow and stem cell transplants, including common questions, information regarding post-transplant concerns, and practical support and resources such as viewable online webcasts.
http://www.nbmtlink.org/National Marrow Donor Program (NMDP)
The National Marrow Donor Program (NMDP) is a nonprofit organization that operates the federally funded registry of volunteer hematopoietic cell donors and umbilical cord blood units in the U.S. Since 1986, the NMDP has been helping patients receive life-saving transplants. The site focuses on information related to bone marrow and cord blood donation.
http://www.marrow.orgRevlimid.com: Information for Patients and Health Care Providers
Revlimid (lenalidomide) is a medicine for those with a type of MDS called del 5q, who require red blood cell transfusions to manage anemia (low red blood cell counts). The site’s Patient Medication Guide provides thorough information on the drug and how it promotes a transfusion-free life style.
http://www.revlimid.com/myelodysplastic-syndromes/myelodysplastic-syndromes-home.aspxVidaza.com: The official site for Vidaza (azacitidine)
Vidaza (azacitidine) is approved to treat all types of MDS, and helps manage symptoms and actively treat the disease. The site contains information on how continued treatment with Vidaza can help reduce the need for blood transfusions, as well as a section on how to self-manage the side effects of this drug.
http://www.vidaza.comClick here to recommend a link.