Information about MDS
Aplastic Anemia & Myelodypslastic Syndrome International Foundation – Info on MDS
The AA&MDSIF Web site provides an overview of myelodysplastic syndromes, drug information, and educational materials, which can be mailed to an individual’s home address free of charge. Their Web site also includes video and audio presentations about MDS, as well as an “Ask the Experts” section.
http://www.aamds.org//aplastic/disease_information/about_the_diseases/meylodsyplastic_synd.phpCancer.net – Section on MDS
Cancer.Net brings the expertise and resources from cancer physicians of the American Society of Clinical Oncology (ASCO) to cancer patients and their loved ones. The site provides timely, oncologist-approved information to help patients and families make informed health-care decisions regarding treatment, coping, and survivorship.
http://www.cancer.net/portal/site/patientLeukaemia Foundation – Booklet about MDS
The Leukaemia Foundation’s booklet is an extensive yet simple guide for patients and their families, including cartoon-like pictures to aid in understanding. The information is written in a patient friendly way, with useful sections on the commonality of MDS, which doctors treat it, how it’s diagnosed, treatment decisions, and a list of other helpful internet sources.
http://www.leukaemia.org.au/web/resources/pdf/booklet_mds.pdfLeukaemia Research
The Leukaemia Research booklet is designed for patients who want to know the basics of MDS in an easy-to-read format, including chapters on types, causes, symptoms, prognosis, and treatment. The booklet also includes a resource section of UK treatment centers that specialize in this disease. All of the content is based on the British Committee for Standards in Haemotology MDS Guidelines.
http://www.lrf.org.uk/media/images/MDS_7049.pdfMayo Clinic – Section on MDS
Mayoclinic.com helps people manage their health with the site’s useful and up-to-date information from the medical practice Mayo Foundation for Medical Education and Research (MFMER). The site is mainly designed for individuals who are experiencing first time symptoms of the disease and need to know when to seek medical attention. There is also a list of lifestyle changes and home remedies that can aid in coping with MDS symptoms.
http://www.mayoclinic.com/health/myelodysplastic-syndromes/DS00596MDS – By Ed
This patient-run site covers the symptoms, diagnosis, prognosis, and treatment of myelodysplastic syndromes (MDS) in less jargon-laden language. Ed, an MDS patient and owner of the site, uses examples from his own experience with MDS to illustrate his explanations of the disease: his own diagnosis, prognosis, and even personal blood work samples. The site offers background information on MDS as well as Ed’s personal experience with his first cycle of treatment in 2009.
http://www.ecomdevs.com/MDS_Symptoms.php/Online Textbook (“Cancer Medicine”) – Chapter on MDS
The National Center for Biotechnology Information provides access to a chapter in the online textbook Cancer Medicine that focuses on MDS written by Dr. Lewis R. Silverman. The information is designed for knowledgeable patients who are familiar with complicated MDS terminology, including the etiology, pathobiology, and clinical laboratory features of the disease. It is not designed for newly diagnosed patients.
http://www.ncbi.nlm.nih.gov/books/bv.fcgi?rid=cmed.chapter.32804The Leukemia & Lymphoma Society (LLS) – Section on MDS
The Leukemia & Lymphoma Society (LLS)’s page on MDS is factual, but brief. In addition to background about the disease, this page also provides incidence, survival, and mortality statistics. Two very helpful sections of the site are “How Will MDS Affect Me?” and “Clinical Examination,” which provide information that easily relates to each individual. Separately, the LLS provides a booklet, which is highly recommended. The booklet introduces MDS and provides a comprehensive overview of the disease in…
http://www.leukemia-lymphoma.org/all_page?item_id=55442The Merck Manual’s Online Medical Dictionary – Section on MDS
The Merck Manual’s Online Medical Dictionary is aimed towards health care professionals due to its complicated medical terminology. The MDS page offers technical information about pathophysiology, signs and symptoms, diagnosis, prognosis, and treatment. This site offers specific and concise information; however, this site is not recommended for the beginning reader.
http://www.merck.com/mmpe/sec11/ch142/ch142d.htmlVirtual Cancer Centre – Info About MDS
Virtual Medical Centre is Australia’s leading medical information Web site. It delivers the latest medical information written by medical professionals, and includes a video library with clips of doctors, patients, educational information, recipes, news, and more.
http://www.virtualcancercentre.com/diseases.asp?did=68Click here to recommend a link.